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 June 7-13, 2021

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Up to 4% of people in Canada are impacted by hidradenitis suppurativa (HS). In recognition of HS Awareness Week 2021, the CSPA is collaborating with HS Heroes and Hidradenitis & Me to share new resources about living well with HS and educate the public about the impacts of this devastating disease. 

In 2020, the CSPA released Scarred for Life: 2020 Update – A National Report of Patients’ Experiences Living with Hidradenitis Suppurativa which included critical information about getting a diagnosis, the importance of a comprehensive care approach to managing HS, experience with - and hopes for - treatments, and advice to people newly diagnosed with HS.

This year, we are building on several of the recommendations of the Scarred for Life report. Through our collaboration this year, we are excited to bring you:

  • A social media awareness campaign 
  • A support group discussion about what a cure is to you
  • Discussions with dermatologists that specialize in treating HS
  • Tips and tricks on managing HS, including battlefield (at-home) wound care
  • A live cooking class that focuses on avoiding foods that can trigger HS symptoms

We invite all to help us to spread the word and to participate, to become informed, and to enjoy our week-long schedule of HS Awareness Week Activities.  

(All events are ET zone.  Those visiting illuminations, taking photos, and participating in walks are asked to follow public health protocols.)

June 6 (Sunday) 

 
Sunset - Midnight 
 
Edmonton High Level Bridge - Illuminated purple
 

June 7 (Monday)

 
10:00 - 10:15pm 
 
Niagara Falls - Illuminated purple
Courtesy of the Niagara Falls Illumination Board
 

June 8 (Tuesday)

 
7:00 - 8:15 pm 
 
Support Group:  "What does the word CURE mean to you?"
is the group discussion topic.  
Dr. Raed Alhusayen will speak on the importance of being open to treatment options and following through to regain hope.
Registration is required for this session.  Please register using this link.  
 
 
 
Patient Voice Instagram Channel: HS Patient experiences will be the focus on this Instagram Channel (Tues & Thurs).
 

June 9 (Wednesday) 

 
    activities TBD
 

June 10 (Thursday) 

 
7:00 - 8:30 pm
 
Cooking Class: A chef will lead a live demonstration avoiding ingredients that trigger HS symptoms.
This event requires pre-registration.  Please use this link to register
 
 
 
Patient Voice Instagram Channel: HS Patient experiences will be the focus on this Instagram Channel (Tues & Thurs).
 

June 11 (Friday) 

 
8:00 pm
 
Mississauga City Hall Clock Tower - Illuminated purple
& Celebration Square Digital Messaging 
 

June 13 (Sunday) 

 
Sunset - Sunrise 
 
Toronto CN Tower - Illuminated purple
(Between the scheduled light show on the half hour.) 
 
Sunset - Sunrise
 
3D Toronto City Sign - Illuminated purple
 
Sunset - Sunrise
 
Brampton Clock Tower - Illuminated purple 
 

All Week 

 
 
 
Walking for HS (virtual): Take and submit photos that include Signs of Hope to raise awareness.  Use HS Awareness hashtags including #HSHeroes and #Walking4HS. Tag yourself and your location for an end-of-week social media montage.
 
 
 
Facts, Tips & Tricks for Managing HS: Twitter conversations with dermatologists specializing in HS as well as self-care videos on social media.
 
 
 
London City-Owned Buildings - Illuminated purple
 
 
 
Canada Life Building Toronto - Illuminated purple 
 
    Guelph Market Square - Illuminated Purple  
 
 

HS Proclamations

The following cities have generously issued proclamations: (Click the thumbnail to read the proclamation)
 
  Alberta  
  Screenshot 20210617 111002 Drive  
 Brampton Burlington Edmonton
Brampton Proclamation Hidradenitis Suppurativa Awareness Week 06.7 13.2021 1   Burlington Proclamation HS Edmonton Proclamation 2021 
Mount Pearl Newfoundland and Labrador  Niagara Falls
 PROCLAMATION HS Awareness Week Mt Pearl Proclamation Newfoundland Labrador Minister of Health HS Awareness Week June 7 13 2021
City of Niag Falls Proclamation Hidradenitis Suppurativa HS Awareness Week 2021 1
Ottawa  St. John's Toronto
OTTAWA Proclamation 2021 Hidradenitis Suppurativa Awareness Week HS st. Johns NL Proclamation 2021 1 HS Awareness Toronto Proclamation 2021 
 
CPSA
HS Heroes
Hidradenitis & Me

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